Roughly 1 million Americans have Tourette Syndrome, but only 50% receive a diagnosis. That means roughly half are going unsupported, not fully aware of why their mind and body is betraying them in ways they cannot seem to understand. This staggering statistic underscores the need for heightened awareness efforts surrounding the condition. The good news? The Tourette Association of America, a proud member of the Movement Disorders Policy Coalition, works tirelessly to advance knowledge and support those living with Tourette Syndrome or another tic disorder.
While there is no cure for Tourette Syndrome, the Association joins forces with other advocacy groups, like MDPC, to achieve their goals of fostering acceptance, raising awareness, advancing research and providing ongoing support to patients and families impacted.
The neurodevelopmental disorder affects people of all ages, ethnicities and backgrounds, and causes sudden, involuntary movements or sounds called tics. Tics can range from mild to severe and are disabling in some cases.
Recognizing the physical, emotional and psychological challenges associated with Tourette Syndrome, the Tourette Association of America brings together advocates and offers valuable resources for patients. The only national organization dedicated solely to serving the Tourette and tic disorders community, the Association has already made a significant impact and is crucial for the continued, collective, efforts of the community. It directs a network of 31 chapters and 85 support groups. It also recognizes 18 Centers of Excellence across the country to improve access to care for people living with the condition.
“There is strength in numbers,” said Amanda Talty, President and CEO of the Tourette Association of America, “and connections like the one we have with MDPC serve to make us better, break down barriers, and reduce stigma.” To learn more about various ways to participate and get involved with the Tourette Association of America during Tourette Syndrome Awareness Month, May 15 – June 15, visit Tourette.org.