More than 40 million Americans are impacted by movement disorders – a changing reality that no one can face alone. Whether you are someone living with a movement disorder, or a care partner, an adult child, a friend, a doctor or a support group leader, Parkinson & Movement Disorder Alliance is a uniquely people-oriented community designed to care for everyone in the Movement Disorder Care and Support Ecosystem©.
Since its inception, PMD Alliance has had the Movement Disorder Care and Support Ecosystem© at its core. The uniquely supportive PMD Alliance community provides innovative programming that fundamentally enlightens, informs, and incites positive change within that system. “We find that when the entire Ecosystem is strengthened, the stronger, more educated and more empowered we all are, the effect on those we serve is immeasurable,” says Sarah Jones, PMD Alliance CEO and co-founder. PMD Alliance serves and strengthens the Ecosystem with various programs and services that recognize everyone is unique and has their own distinctive needs – a belief that is shared with the Movement Disorders Policy Coalition. Their resources include:
- Online and in-person programming that reaches tens of thousands of people across the United States and in 34 countries worldwide.
Training support group leaders and maintaining a network of 2,400 support groups.
Their “PD&Me” mobile app for iOS and Android is the only hub of support and exercise groups in all 50 states.
“Getting Real Online” is a virtual community for care partners and adult children. The platform includes a video library on more than 100 topics, as well as chat groups and discussion groups where you can interact with other care partners and adult children on a variety of topics.
PMD Alliance will launch an inaugural Advanced Therapeutics in Movement & Related Disorders Congress in Washington DC, October 24-26, 2021 – further educating and connecting medical professionals who can then better support their patients.
The Movement Disorders Policy Coalition is proud to work alongside its member organization Parkinson & Movement Disorder Alliance to create a world where all people impacted by movement disorders are resilient, fully confident, embrace self-efficacy and are supported by their community. To learn more about PMD Alliance, visit www.pmdalliance.org.