This month, the Movement Disorders Policy Coalition is pleased to feature the Huntington’s Disease Society of America as a coalition member. The Huntington’s Disease Society of America is dedicated to improving the lives of patients and those affected by Huntington’s disease.
“The Huntington’s Disease Society of America is proud to partner with the Movement Disorders Policy Coalition to spread awareness about this rare disease,” says Huntington’s Disease Society of America President and CEO Louise Vetter. “We will continue in our efforts to serve patients and families affected by Huntington’s disease by creating a culture of hope, support and community.”
The Huntington’s Disease Society of America hosts community service and advocacy events to spread awareness on Huntington’s disease. They also produce educational materials and advanced research for patients and families suffering from the disease.
Each May for Huntington Disease Awareness Month, the Huntington’s Disease Society of America hosts a social media initiative. Patients and their families are encouraged to share stories, photos and videos on social media using the hashtag #LetsTalkAboutHD to spread awareness on Huntington’s disease.